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C Ate Lunch with Baby Jo!
In many households, this would be a normal lunchtime picture. Brother and sister eating at the table together, each of them feeding themselves their food. In my home, this moment was enough to bring...
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(Kinda) Wordless Wednesday: Vacation Prep Starts Early! #tubie #gtube
We’re 10 months into this g-tube life, and I’m getting smarter about everything. I’ve started preparing now for our vacation that starts on Sunday! So far I’ve made 8 of the 18 feeds that C will need...
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Wondering what the future holds for my special needs child
I know that I spend too much time thinking about the future. I just can’t help but wonder what the future holds for my special needs son. When C has difficulty listening to directions, I wonder how...
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(Kinda) Wordless Wednesday: The Multitasking Tubie
Here’s my little tubie boy taking care of a couple things at once: listening therapy and a tube feeding! Because he simply wouldn’t be a mini-me without multitasking. The post (Kinda) Wordless...
View ArticleClinging to moments with other parents who “get it.”
I found myself sitting in a break room with five or six other parents. Normally, I leave for a few, brief moments of alone time during C’s group therapy sessions; but they have an iPad set up so that...
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C and the bottle of juice
My son has always refused every beverage but water (and ice cream!). He has been doing very well in his feeding group therapy. They are exposing him to a wide variety of foods and challenging him to...
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Real Food Blends for my Tubie!
Disclosure: I received product from Real Food Blends in exchange for this review. The links in this post are affiliate links. The thoughts and opinions below are entirely my own. “One option is going...
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Tubie Hack: Make Syringes Last Longer
When C got his tube, I was shocked by the cost of home medical supplies. Our medical supplier recently changed the types of syringes they use and instead of being able to stretch one 60 mL syringe out...
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My son, we’ve come so far.
As you reached over and pulled me into a tight hug at bedtime, I held you close and realized how well you are doing. I no longer hug you tightly and only feel bones. Your hands have a little more...
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Baby Jo wants to help tube feed her big brother.
My Baby Jo is tender-hearted, always thinking about the people she loves. C mentions that he’s thirsty and she runs to find his water. I say it’s time to go and she gets everyone’s shoes out of the...
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C’s Organic Blended G-Tube Diet
Disclosure: This post includes affiliate links and I would make a little money if you made a purchase after clicking on them. C has this organic blended diet habit that I need to support! C has always...
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5 Tips for Surviving the Holidays with a Tubie
Disclosure: I received product from Orgain for sampling purposes. I am also an affiliate for Real Food Blends. I’m including these products below because C has used them and I believe in the mission of...
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Hi Teacher, My Son has Special Needs
C is starting 3k on January 5! He’ll be in school three mornings per week. Those mornings conflict with the group therapies he has attended since February, adding to my anxiety about his transition....
View ArticleThe Truth is I’m Struggling
You may have gotten this from my posts about fear and the autism clinic last week, but the truth is I’m struggling. Special needs parenting is kicking my butt in a whole new way. I knew C would have a...
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The Truth About Tube Feeding
It is Feeding Tube Awareness Week 2015 and this year’s theme is, “The Truth About Tube Feeding.” I’d love to tell you about our lives with C’s g-tube. A feeding tube saved my son’s life. In August...
View ArticleC did something big tonight. Huge!
Autism can make for a lot of difficult times, so I like to celebrate every accomplishment. It can take a long time to get there! It’s been a few of those difficult days again, but C has been eating...
View ArticleIt Happened Two Years Ago
I’m sitting here in silence after my children are in bed and it hit me: it happened two years ago. Two years ago, I called the doctor and the pediatric GI because C stopped eating and drinking. He was...
View ArticleHappy 2-year Tubie-versary, C!
Today marks C’s 2-Year Tubie-Versary! Two years ago today, he had his g-tube surgically placed. He was a 2-year-old who was off the bottom of the BMI chart and now he is a healthy, happy 4-year-old. He...
View ArticleUsing the Lunch Train to Encourage My Son to Eat {+Free Printable!}
This shop has been compensated by Collective Bias, Inc. and its advertiser. All opinions are mine alone. #HorizonLunch #CollectiveBias During a recent strategy session with my 4-year-old son’s...
View Article(Kinda) Wordless Wednesday: Two Years with the G-Tube Button
Look at this photo from two years ago! I can’t believe my baby boy has had two years with the g-tube button. He had the surgery more than two years ago, then they inserted the button three months after...
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